I managed to finish the semester without bailing on my colleagues. I hope I did a better job at it than last spring. It took all I had and has cost me dearly. I am back at the bottom of the hill and learning to contemplate the height of the climb back up. I have been exhausted and in pain. Today was a spot better and that gave me hope. It is amazing to me how one day of bad symptoms can really take me down to the dumps and leave me there.
I guess it was way more than one day, though. I have been in a downward spiral since Thanksgiving week.
So, no more infusions for now. They are too dangerous. The idea is pursue a 'cleaner' diagnosis to my autoimmune disease. My rheumatologist says it is probably Skorgen's disease. This would explain a lot of my issues. I have to get an eye test done and then a lip biopsy to confirm the diagnosis. It would be good to know something like that. There is no cure but there are treatments and being aware can help you avoid some of the worst health issues.
This whole internet searching and reading is a funny thing. Information is good but not if it is too much and you get nutso about it. I am trying not to do nutso just now. I'll let you know how that goes!
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