Clinging

Clinging
You won't drown.

Wednesday, February 16, 2011

sick of sick or how do I dig myself out?

I have not posted here for awhile because I've been too sick.  I spent the weekend in the hospital and had an upper endoscopy done on Monday.  I left the hospital with an unresolved UTI and was told to follow up with my dr.  So, I saw her on Thursday and she said, "urologist."
I finally saw one today and the infection has worsened a great deal since I left the hospital.  I had not been given the correct antibiotic for the infection.
The hospital was a nightmare.  I went in on Thursday at 9 pm because I was spewing out both ends for hours and in a great deal of pain. I was also bleeding.  It took three  hours to get a room and then I was told I had a bladder infection and on top of that all the other stuff, they were admitting me.  I got into a room at 6:00a.m.  They treated me with iv antibiotics, fluids and pain meds but I never saw the same doctor twice and no one ever called in a specialist when my infection did not clear.  Instead, they told me to go home and deal with it separately.  I seemed to be taking up space they needed.  Then they lost my medications.  I am just really angry.  Here it is, Wednesday, and I have just been told by the urologist that the hospital should have given me the right meds and I wouldn't be this sick. 
I feel worn out and run over and like I've fallen down this deep hole of Katie's crappy health.
I cannot find the bottom of the hole.  I just keep falling.  Every once in awhile I grab onto a foothold or handhold and think I have myself balanced, and then... WHAM.
I want to get healthier.  I am trying.  Everyone and their dog has an opinion of how I am not doing it right or whatever or maybe, just maybe that I'm nuts.  I don't know what to believe myself anymore.

I have been off of gluten for 10 weeks and think it helps.  I got positive tests for Celiac's which sort of made that more the point.  I was excited about it.  Today, I find out that the gastro saw no signs of Celiac damage when he biopsied my stomach on Monday.  So what does that mean?  I will see him in two weeks.
So am I doing this gluten thing for no reason?  Am I really getting better?  WTF?
I'm confused and sad and tired and I wish my parents were here to tell me how to make things all better. 
The hospital was very lonely.  In my family we always stay by the bedside of the sick person and watch over their care.  No one could do that for me this week.   Stan had to take care of the kids.  It was scary.
Maybe I will sleep now and dream of no pain and no doctors.  

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